Resource Library

International Rett Syndrome Foundation Resource Library

Explore the IRSF Resource Library, a comprehensive hub offering tools, information, and guidance designed to empower and assist families navigating the complexities of life with Rett syndrome.

Available resources include:

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Comprehensive Care Guidelines

A guide to suggested visit schedules, Rett concerns, and timelines for follow-up appointments to share with your doctor

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Rett Syndrome Handbook

A handbook detailing everything you need to know about Rett syndrome

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Communication Guidelines

Guidelines with practical tips and strategies to help with communication for anyone who interacts or provides care to your child with Rett syndrome

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Transition of Care Toolkit

A toolkit designed to help caregivers navigate through the varied needs of an aging loved one with Rett

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Recorded Webinars

Guide to Accessible Adventuring featuring Cory Lee and Sherri Brady

This session covers accessible travel tips for the Rett community, including:

Getting there: air travel
Staying there: hotels and other accommodations
Navigating while there: getting around town

Caring for the Caregivers featuring mental health advocate Cristol Barrett O'Loughlin, Founder & CEO of Raregivers^TM

This 1-hour session covers how to practice sensory self-care in micro-moments a day:

Practical self-care tips you can build into your day to help you better care for yourself
Resources to support your mental health and emotional well-being as a caregiver for your loved one living with Rett syndrome

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Resource Library

International Rett Syndrome Foundation Resource Library

Comprehensive Care Guidelines

Rett Syndrome Handbook

Communication Guidelines

Transition of Care Toolkit

Recorded Webinars

Guide to Accessible Adventuring featuring Cory Lee and Sherri Brady

Caring for the Caregivers featuring mental health advocate Cristol Barrett O'Loughlin, Founder & CEO of RaregiversTM

Resource Library

International Rett Syndrome Foundation Resource Library

Comprehensive Care Guidelines

Rett Syndrome Handbook

Communication Guidelines

Transition of Care Toolkit

Recorded Webinars

Guide to Accessible Adventuring featuring Cory Lee and Sherri Brady

Caring for the Caregivers featuring mental health advocate Cristol Barrett O'Loughlin, Founder & CEO of RaregiversTM

Caring for the Caregivers featuring mental health advocate Cristol Barrett O'Loughlin, Founder & CEO of Raregivers^TM

Caring for the Caregivers featuring mental health advocate Cristol Barrett O'Loughlin, Founder & CEO of Raregivers^TM