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Magnolia Guide Icon for Episode 2: Cross-Country Skiing

Individuals with Rett syndrome may not lead a "typical" life, but they can lead an incredible one

Follow Magnolia ("Maggie"), a 13-year-old with Rett syndrome, and her family as they head out on adventures across the United States with others living with Rett syndrome.

This Rett awareness series was created by AJ and Jenny Tesler and supported by Acadia Pharmaceuticals Inc.

Exclusives

The Drew Barrymore Show Talks About Rett Syndrome

4:53 min | 11/15/24

The Drew Barrymore Show teamed up with Rett Revealed to raise awareness for Rett syndrome and share the incredible adventures of the Rett families featured in Magnolia's Guide to Adventuring.

Episodes

Episode 1: Downhill Skiing

Episode 1: Downhill Skiing With the Randol Family

9:31 min |5/14/24

Magnolia starts her adventures in New Hampshire, where she learns how the Randol family adapts to the cold so they can downhill ski.

Episode 2: Cross-Country Skiing

Episode 2: Cross-Country Skiing With the DeSantis Family

9:57 min |5/30/24

The adventurous DeSantis family teaches
Magnolia how she can adapt her equipment for
cross-country skiing.

Episode 3: Ice Skating

Episode 3: Ice Skating With the Bryman Family

10:07 min |6/12/24

Magnolia and the Bryman family conquer ice skating, one of the most challenging activities for the Teslers to adapt so far.

Episode 4: Horseback Riding

Episode 4: Horseback Riding With the West Family

10:41 min |6/25/24

Magnolia and the West family saddle up for an unforgettable horseback riding experience and practice gait-training and staying regulated in a new environment.

Episode 5: ATV Safari

Episode 5: ATV Safari With Catherine and Amber

9:14 min |7/12/24

Magnolia and Catherine cruise the rugged trails of Texas Hill Country for a safari.

Episode 6: Dolphin Swimming

Episode 6: Dolphin Swimming With the Shukovsky Family

11:10 min |7/23/24

Magnolia and the Shukovsky family practice nonverbal communication through play with their fin-tastic friends.

Episode 7: White-Water Rafting

Episode 7: White-Water Rafting With the Bouscher and Connor Families

7:39 min |8/09/24

Magnolia and the Bouscher and Connor families work together to navigate a river’s twists and turns while white-water rafting in the Poconos.

Episode 8: Waterskiing

Episode 8: Waterskiing With the Weaver Family

11:36 min |8/27/24

Magnolia and the Weaver family learn to water ski using sit skis and work on their confidence with a splash.

Episode 9: Surfing

Episode 9: Surfing With the
Carlo Family

11:25 min |9/26/24

Magnolia and the Carlo family ride the waves and experience the calming power of the ocean on
New York’s shore.

Episode 10: Kayaking

Episode 10: Kayaking With the Alvarado Family

11:38 min |10/07/24

Magnolia and the Alvarado family grab their paddles and kayak through the islands of
the Long Island Sound.

community spotlight logo

About the Filmmakers:
AJ & Jenny Tesler

AJ Tesler is an award-winning television, film, and new media producer and director who has created thousands of hours of content for the likes of Netflix, Comedy Central, Lionsgate, MTV, and Sony.

When he learned his daughter had Rett syndrome, he was compelled to do everything in his power to tell her story and raise awareness for the disease.

That's when he and his wife, Jenny, started making Magnolia's Hope (YouTube Series and Documentary Film) and now, Magnolia’s Guide to Adventuring.

Both AJ and Jenny blog and are active advocates for Rett syndrome.

Magnolia sitting on a horse with her family—her parents, Jenny and AJ, and her brother, Grayden.

The Tesler Family—Jenny, AJ, Grayden, and Magnolia

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