NEW EPISODEFinding joy in the everyday moments with Rett syndrome
A Rett syndrome diagnosis can change every aspect of your family’s life. You don’t have to face the future alone. See Rett syndrome through the eyes of families who are living their lives in their own unique way.
Create a personalized profile for your loved one
Every person with Rett syndrome is unique. Use this tool to create a personalized profile that you can download and share with your loved one’s care team so they can get to know them better.
Start now
Create a personalized profile for your loved one
Every person with Rett syndrome is unique. Use this tool to create a personalized profile that you can download and share with your loved one’s care team so they can get to know them better.
Start now
Just as every person impacted by Rett syndrome is different, so too is their experience.
Whether living with Rett, caring for a loved one, or advocating on behalf of Rett, every journey is made up of its own unique moments.